Great news has been traveling fast! Lillian is progressively getting BETTER and was moved up and out of the PICU today!!
Please see below the events that led up to Lillian's move on up :)
"I have been fighting with the nurses 24/7. We have to be too close to the next patient"
"So, that's the only area for me to sit. And where that nurse is, that's the other patient's bed. They have the little girl's mom, dad, grandma and two brothers in the room visiting."
"Lilli is in the polka dot bed. And you can see that there is only a foot and a half between beds..."
"You can only have one visitor (according to the rules) and no one under 14. But they are having 4 visitors and the brothers are both under 14!"
When Lauren asks the nurses about it they say "I can't move bed spaces because more patients may come in. And to be patient because she'll be moved to another floor soon."
"Left is Lillian's bed. Right is Esmerelda's bed. And because the oxygen cord is so short, I can only sit right where I am (where I'm taking the pic). Esmerelda is 2 years old and has surfactant deficiency (lung disorder) and some of the things that she's going through are right next to Lillian and her bed. Not sanitary, at all."
"I would try to fight more for our "rights" and have us moved somewhere else, but we are already going thru this ICU trauma."
"I just have one of those feelings that today is going to be fabulous... Let's GO Lillian! Cheering for her, screw all the games on today ;-)~"
"We get a private room with Lilli on the 7th floor, progressive care unit!!!! Whew! Almost out hopefully! Now I get to sleep w her!!! And have my own shower bathroom!!!!!! I knew today was gonna have somethin good ;-)"
"Lillian is getting better. She is being weened off high flow oxygen. Her ativan is weened to every 6 hours and methadone is down to every 8. She is done with Antibiotics! She weighs 10.3 pounds now!! When she arrived in the hospital on November 11 she weighed 9.3 pounds!! Tomorrow will know more because her pulmonary team will come visit!!"
All of this is great news and we are so excited that Lillian is getting better. Please pray for continued progress and health for Lillian.
Here are some more pics of Lillian taken over the last few days: