Saturday, April 17, 2010
Lillian is slowly being taken off of her morphine drip, which she has been on since the night she was born. Today, they decided to take it even more slowly than before, and having to give her Ativan during the day as she gets upset and uncomfortable. I HATE that ativan, Im glad it's helping her feel better, but she just lays limp when she has taken it. Today she and I laid in the recliner for 3 1/2 hrs together, we both snoozed a bit together.. Her oral therapist came in as well to teach me how to work with stimulating Lilli's mouth muscles. She taught me some neat techniques and Lilli sucked a little bit but we need MUCH more work! If she can get this down then we can get the feeding tube out and we can be ON OUR WAY HOME!